Valeri’s birthweight was 1 pound 12 ounces and 11 inches long. Weight at passing was 9 pounds and she was 24″ long. Valeri was born 11 weeks early and weighed only 1 pound 12 ounces. At one week old, we got the diagnosis of 3p25-pter. She was on the extreme end of disabilities…deaf, blind, bad heart, constant seizures, absence of corpus collusum, ptosis, dysmorphic features, malrotated bowels and organs, inability to swallow requiring g-j tube placement and the MOST BEAUTIFUL smile! 🙂
She only lived 14 months, but after learning to meet her many medical needs we didn’t want to put that knowledge to waste, so we became foster parents to medically fragile children. So we’d like to think her legacy lives on.